ABSTRACT
Background: Family caregivers play an important role in providing long-term care for people with diabetes mellitus because it is a chronic disease that requires critical attention. This increases the burden of family caregivers which affects the health status of people with this disease. Therefore, the aim of this study is to determine the correlation between the burden of family caregivers and the health status of people with diabetes mellitus.
Design and methods: This is an analytic observational study which was carried out in the work area ofpublic health centers in Malang City using a cross-sectional design approach. The subjects used were 327 people with diabetes mellitus and their families were selected using the cluster sampling technique. Data collection was carried out using demographic data instruments, Zarit Burden Interview (ZBI) questionnaire to measure the burden of family caregivers and the SF 12 questionnaire to measure the health status of people with diabetes mellitus.
Results: The results of the Spermank-Rank statistical test showed that there was a negative relationship between the burden of family caregivers and the health status of people with diabetes mellitus (p-value 0.000 and coefficient value of -0.333).
Conclusions: It was concluded that the lesser the burden on family caregivers, the better the health status of people with diabetes mellitus. Therefore, interventions are needed to reduce the burden of family caregiver and improve the health status of patients with diabetes mellitus.
REFERENCES
International Diabetes Federation. IDF Diabetes Atlas. 9th ed. Brussels: International Diabetes Federation; 2019.
International Diabetes Federation. IDF Diabetes Atlas. 7th ed. Brussels: International Diabetes Federation; 2017.
Anizar RDS, Pudjiastuti E. [Studi Deskriptif Mengenai Resiliensi Istri sebagai Caregiver pada Penderita Diabetes Mellitus (DM) Tipe II di RSUD Sejiran Setason (Descriptive study regarding the resilience of wives as caregivers in type II diabetes mellitus (DM) patients at the Sejiran Setason Regional Hospital)].[Article in Indonesian with English abstract]. Prosiding Psikologi 3:1-6. Available from: https://docplayer.info/63199146-Prosiding-psikologi-issn.html
Fadilah N, Kusnanto, Nursalam, Rahariyani LD. Analysis of influencing factors of burden of caregiver among stroke patients at home. J Public Health Africa 2019;10:1188. DOI: https://doi.org/10.4081/jphia.2019.1188
Schulz R, Beach SR, Czaja SJ, et al. Family caregiving for older adults. Annu Rev Psychol 2020;4:635-59. DOI: https://doi.org/10.1146/annurev-psych-010419-050754
Annisa F. Burden of family caregiver. Belitung Nurs J 2016;2:10-18. DOI: https://doi.org/10.33546/bnj.7
Goodhead A, McDonald J. Informal caregivers literature review: A report prepared for the National Health Committee. Health Services Research Centre, Victoria University of Wellington; 2007. Available from: https://www.moh.govt.nz/notebook/nbbooks.nsf/0/fb327285c9043995cc25734500069193/$FILE/informal-caregivers-literature-review.pdf
Gupta S, Isherwood G, Jones K, et al. Assessing health status in informal schizophrenia caregivers compared with health status in non-caregivers and caregivers of other conditions. BMC Psychiatry 2015;15:162. DOI: https://doi.org/10.1186/s12888-015-0547-1
Given BA, Given CW, Sherwood PR. Family and caregiver needs over the course of the cancer trajectory. J Support Oncol 2012;10:57–64. DOI: https://doi.org/10.1016/j.suponc.2011.10.003
Gibney MJ, Margetts BM, Kearney JM, et al. [Gizi Kesehatan Masyarakat (Public health nutrition)].[Book in Indonesian]. Jakarta: EGC; 2009.
Megari K. Quality of life in chronic disease patients. Health Psychol Res 2013;1:e27. DOI: https://doi.org/10.4081/hpr.2013.932
Saleh F, Ara F, Mumu SJ, et al. Assessment of health-related quality of life of Bangladeshi patients with type 2 diabetes using the EQ-5D: a cross-sectional study. BMC Res Notes 2015;8:497. DOI: https://doi.org/10.1186/s13104-015-1453-9
Mandagi AM. [Faktor yang Berhubungan Dengan Status Kualitas Hidup Penderita Diabetes Mellitus (Factors associated with quality of life status of diabetes mellitus patients)].[Thesis in Indonesian]. Surabaya: Universitas Airlangga; 2010.
Ogunmodede AJ, Abiodun O, Makanjuola AB, et al. Burden of care and psychological distress in primary caregivers of patients with type -2 diabetes mellitus in a tertiary hospital in Nigeria. Ethiop J Health Sci 2019;29:697-708.
Awadalla AW, Ohaeri JU, Al-Awadi SA, et al. Diabetes mellitus patients’ family caregivers’ subjective quality of life. J Natl Med Assoc 2006;98:727-36.
Stuart GW. Principle and practice of psychiatric nursing. St. Louis: Mosby Elsevier; 2009.
Joanna Briggs Institute. Caregiver burden of terminally-ill adults in the home setting. Nurs Health Sci 2012;14:435-7. DOI: https://doi.org/10.1111/nhs.12013
Baig AA, Benitez A, Quinn MT, et al. Family interventions to improve diabetes outcomes for adults. Ann N Y Acad Sci 2015;1353:89-112. DOI: https://doi.org/10.1111/nyas.12844
AlHaidar AM, AlShehri NA, AlHussaini MA. Family support and its association with glycemic control in adolescents with type 1 diabetes mellitus in Riyadh, Saudi Arabia. J Diabetes Res 2020;2020:5151604. DOI: https://doi.org/10.1155/2020/5151604
Sari IP, Hidayati H. [Beban Keluarga Dalam Merawat Anggota Keluarga dengan penyakit Diabetes Mellitus di Aceh (Family burden in caring for family members with diabetes mellitus in Aceh)].[Article in Indonesian]. Jurnal Ilmiah Mahasiswa 2016;1:435-7.
Adianta IKA, Wardianti GA. [Beban Keluarga Pada Penderita Diabetes Melitus Tipe II (Family burden in type II diabetes mellitus patients)].[Article in Indonesian]. JRKN 2018;2:85-90. DOI: https://doi.org/10.37294/jrkn.v2i1.102
Gautam Y, Sharma AK, Agarwal AK, et al. A cross-sectional study of QOL of diabetic patients at tertiary care hospitals in Delhi. Indian J Community Med 2009;34:346-50. DOI: https://doi.org/10.4103/0970-0218.58397
Reid MKT, Walker SP. Quality of life in Caribbean youth with diabetes. West Indian Med Journal 2009;58:1–8.
Hakim BH, Abdullah AZ, Hanis M. [Analisis Faktor Risiko Diabetes Melitus tipe 2 di Puskesmas Tanrutedong, Sidenreg Rappan (Analysis of risk factors for type 2 diabetes mellitus at Puskesmas Tanrutedong, Sidenreg Rappan)].[Article in Indonesian]. Medika: Jurnal Kedokteran Indonesia 2009;35:228.
Putri NHK. [Hubungan Empat Pilar Pengendalian DM Tipe 2 dengan Rerata Kadar Gula Darah di Puskesmas Pacar Keling Surabaya (The relationship of the four pillars of type 2 DM control with average blood sugar levels at Pacar Keling Health Center, Surabaya)].[Article in Indonesian]. Surabaya: Universitas Airlangga, 2013.
Coser A, Sittner KJ, Walls ML, et al. Caregiving stress among American Indians with type 2 diabetes: The importance of awareness of connectedness and family support. J Fam Nurs 2018;24:621-39. DOI: https://doi.org/10.1177/1074840718810550